September 12, 2011
The journey home again
He had an ECHO this morning and so far the leak in the T valve seems much better and the pulmonary is holding well. We are again at a place where we need to wait and see, not just to know if he will reject the pulmonary valve but also to know if he will need the shunt. This you can pray for as we just don't want to have another surgery! His lungs have fluid on them so we will need another chest Xray on Monday a long with another ECHO.
The good news, and there is good news, is that we are home! We are home and already Josh seems happier. He is sleeping as I write this, and he wanted to play with me today so I am guessing he is on his way to forgiving me. I was lying down on the couch, eyes closed, desperately trying to rest (I had much less sleep than he did), and he climbed up on my shoulder, lay down beside me and started using his doctor kit to take my vitals. Payback I am sure for the countless times he was woken for just this reason. He is a warrior, a hero, a miracle and no matter how angry he is with me I thank God that we live in a place where this was possible, where we could have this needed surgery without needing to raise the funds and stress the money. I am thankful that we had such an incredible surgeon who was able to fix the T-valve rather than replace it, and I am thankful for all the thousands of prayers that went up on behalf of Josh and our family, for the friends who went above and beyond to make this as painless as possible.
It was time to say good night, we have a road to travel and I am weary.